ARIA digital anamorphosis: Digital transformation of health and care in airway diseases from research to practice

Jean Bousquet* (Corresponding Author), Josep M Anto, Claus Bachert, Tari Haahtela, Torsten Zuberbier, Wienczyslawa Czarlewski, Anna Bedbrook, Sinthia Bosnic-Anticevich, G Walter Canonica, Victoria Cardona, ElisioCosta [Unknown], Alvaro A Cruz, Marina Erhola, Wytske J Fokkens, Joao A Fonseca, Maddalena Illario, Juan CarlosIvancevich, Marek Jutel, Ludger Klimek, PiotrKuna [Unknown]Violeta Kvedariene, LTT Le, Desiree Larenas-Linnemann, Daniel Laune, Olga M Lourenço, Eric Melén, Joaquim Mullol, Marek Niedoszytko, Mikaëla Odemyr, Yoshitaka Okamoto, Nikos G Papadopoulos, Vincenzo Patella, Oliver Pfaar, Nhân Pham-Thi, Christine Rolland, Boleslaw Samolinski, Aziz Sheikh, Mikhail Sofiev, Charlotte SuppliUlrik, Ana Todo-Bom, Peter V Tomazic, Sanna Toppila-Salmi, Ioanna Tsiligianni, Arunas Valiulis, Erkka Valovirta, Maria-Teresa Ventura, Samantha Walker, Sian Williams, Arzu Yorgancioglu, Ioana Agache, Cezmi A Akdis, Rute Almeida, Ignacio J Ansotegui, Isabella Annesi-Maesano, Sylvie Arnavielhe, Xavier Basagaña, Eric Bateman, Annabelle Bédard, Martin Bedolla-Barajas, Sven Becker, Kazi S Bennoor, Samuel Benveniste, Karl C Bergmann, Michael Bewick, Slawomir Bialek, Nils Billo, Carsten Bindslev-Jensen, Leif Bjermer, Hubert Blain, Matteo Bonini, Philippe Bonniaud, Isabelle Bosse, Jacques Bouchard, Louis P Boulet, Rodolphe Bourret, Koen Boussery, Fluvio Braido, Vitalis Briedis, Andrew Briggs, Christopher E Brightling, JanBrozek [Unknown], Guy Brusselle, Luisa Brussino, Roland Buhl, Roland Buonaiuto, Moises A Calderon, Paolo Camargos, Thierry Camuzat, Luis Caraballo, Ana Maria Carriazo, Warner Carr, Christine Cartier, Thomas Casale, Lorenzo Cecchi, Alfonso M Cepeda Sarabia, Niels Chavannes, Ekaterine Chkhartishvili, Derek K Chu, Cemal Cingi, Jaime Correia de Sousa, David J Costa, Anne Lise Courbis, Adnan Custovic, Biljana Cvetkosvki, Gennaro D'Amato, Jane da Silva, Carina Dantas, Dejan Dokic, Yves Dauvilliers, Giulia De Feo, Govert De Vries, Philippe Devillier, Stefania Di Capua, Gerard Dray, Ruta Dubakiene, Stephen R Durham, Marc Dykewicz, Motohiro Ebisawa, Mina Gaga, Yehia El-Gamal, Enrico Heffler, Regina Emuzyte, John Farrell, Jean-Luc Fauquert, Alessandro Fiocchi, Antje Fink-Wagner, Jean-François Fontaine, José M Fuentes Perez, Bilun Gemicioğlu, Amiran Gamkrelidze, Judith Garcia-Aymerich, Philippe Gevaert, Maximiliano Gomez, Sandra González Diaz, Maia Gotua, Nick A Guldemond, Maria-Antonieta Guzmán, Jawad Hajjam, Yunuen R Huerta Villalobos, Marc Humbert, Guido Iaccarino, Despo Ierodiakonou, TomohisaIinuma [Unknown], Ewa Jassem, Guy Joos, Ki-Suck Jung, Igor Kaidashev, Omer Kalayci, Przemyslaw Kardas, Thomas Keil, Musa Khaitov, Nikolai Khaltaev, Jorg Kleine-Tebbe, Rostislav Kouznetsov, Marek L Kowalski, Vicky Kritikos, Inger Kull, Stefania La Grutta, Lisa Leonardini, Henrik Ljungberg, Philip Lieberman, Brian Lipworth, Karin C Lodrup Carlsen, Catarina Lopes-Pereira, Claudia C Loureiro, Renaud Louis, Alpana Mair, Bassam Mahboub, Michaël Makris, Joao Malva, Patrick Manning, Gailen D Marshall, Mohamed R Masjedi, Jorge F Maspero, Pedro Carreiro-Martins, Mika Makela, Eve Mathieu-Dupas, Marcus Maurer, Esteban De Manuel Keenoy, Elisabete Melo-Gomes, Eli O Meltzer, Enrica Menditto, Jacques Mercier, Yann Micheli, Neven Miculinic, Florin Mihaltan, Branislava Milenkovic, DimitiriosI Mitsias, Giuliana Moda, Maria-Dolores Mogica-Martinez, Yousser Mohammad, Steve Montefort, Ricardo Monti, Mario Morais-Almeida, Ralph Mösges, Lars Münter, Antonella Muraro, Ruth Murray, Robert Naclerio, Luigi Napoli, Leila Namazova-Baranova, Hugo Neffen, Kristoff Nekam, Angelo Neou, Björn Nordlund, Ettore Novellino, Dieudonné Nyembue, Robin O'Hehir, Ken Ohta, Kimi Okubo, Gabrielle L Onorato, Solange Ouedraogo, Julia Palamarchuk, Isabella Pali-Schöll, Peter Panzner, Hae-Sim Park, Gianni Passalacqua, Jean-Louis Pépin, Ema Paulino, Jim Phillips, Robert Picard, Hilary Pinnock, Davor Plavec, Todor A Popov, Fabienne Portejoie, David Price, Emmanuel P Prokopakis, Fotis Psarros, Benoit Pugin, Francesca Puggioni, Pablo Quinones-Delgado, Filip Raciborski, Rojin Rajabian-Söderlund, Frederico S Regateiro, Sietze Reitsma, Daniele Rivero-Yeverino, Graham Roberts, Nicolas Roche, Erendira Rodriguez-Zagal, Regina E Roller-Wirnsberger, Nelson Rosario, Antonino Romano, Menahem Rottem, Dermot Ryan, Johanna Salimäki, Mario M Sanchez-Borges, Joaquin Sastre, Glenis K Scadding, Sophie Scheire, Peter Schmid-Grendelmeier, Holger J Schünemann, FaradibaSarquis Serpa, Mohamed Shamji, Juan-Carlos Sisul, Dirceu Solé, David Somekh, Talant Sooronbaev, Milan Sova, François Spertini, Otto Spranger, Cristiana Stellato, Rafael Stelmach, Michel Thibaudon, Teresa To, MondherToumi [Unknown], Omar Usmani, AntonioA Valero, Rudolph Valenta, Marylin Valentin-Rostan, Rianne van der Kleij, Michiel Van Eerd, Olivier Vandenplas, Tuula Vasankari, Antonio Vaz Carneiro, Giorgio Vezzani, Frédéric Viart, Giovanni Viegi, Dana Wallace, Martin Wagenmann, De Yun Wang, Susan Waserman, Magnus Wickman, Dennis M Williams, Gary Wong, Piotr Wroczynski, Panayiotis K Yiallouros, Osman M Yusuf, Heather J Zar, Stéphane Zeng, Mario E Zernotti, Luo Zhang, Nan Shan Zhong, Mihaela Zidarn

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

41 Citations (Scopus)
3 Downloads (Pure)

Abstract

Digital anamorphosis is used to define a distorted image of health and care that may be viewed correctly using digital tools and strategies. MASK digital anamorphosis represents the process used by MASK to develop the digital transformation of health and care in rhinitis.It strengthens the ARIA change management strategy in the prevention and managementof airway disease. The MASK strategy is based on validated digital tools. Using the MASK digital tool and the CARAT online enhanced clinical framework, solutions for practical steps of digital enhancement of care are proposed.
Original languageEnglish
Pages (from-to)168-190
Number of pages23
JournalAllergy
Volume76
Issue number1
Early online date23 Oct 2020
DOIs
Publication statusPublished - 7 Jan 2021

Bibliographical note

Funding Information:
MASK funding was obtained from EU grants (SPAL, POLLAR, Sunfrail, Rhinitis and Asthma TWINNING, DHE TWINNING on severe asthma), the Région Occitanie (France), unrestricted educational grants (Meda, Mylan, ALK, GSK, Novartis, Sanofi, Stallergènes and Uriach) and private donations. Euforea provided assistance for the ARIA website and the physician's questionnaire.

Funding Information:
MA reports personal fees from POCI‐01‐0145‐FEDER‐029130 mINSPIRERS—mHealth to measure and improve adherence to medication in chronic obstructive respiratory diseases—generalization and evaluation of gamification, peer support and advanced image processing technologies from ERDF (European Regional Development Fund) funded by the COMPETE2020 and by National Funds through FCT (Fundação para a Ciência e a Tecnologia). EB reports personal fees from Novartis, Menarini, ALK, Sanofi Regeneron, Boehringer Ingelheim, AstraZeneca, Sanofi Genzyme, Orion, and is a member of the Science Committee and Board of the Global Initiative for Asthma (GINA). PB reports personal fees and other from Roche, Boehringer and Novartis, personal fees from AstraZeneca and TEVA, and other from Chiesi and Stallergenes. LPB reports research grants for participation to multicentre studies from AstraZeneca, Boston Scientific, GlaxoSmithKline, Hoffman La Roche, Novartis, Ono Pharma, Sanofi and Takeda, support for research projects introduced by the investigator from AstraZeneca, Boehringer Ingelheim, GlaxoSmithKline, Merck and Takeda, fee for consulting and advisory boards from Astra Zeneca, Novartis and Methapharm, nonprofit grants for production of educational materials from AstraZeneca, Boehringer‐Ingelheim, GlaxoSmithKline, Merck and Novartis, conference fees from AstraZeneca, GlaxoSmithKline, Merck and Novartis, and support for participation in conferences and meetings from Novartis and Takeda. JB reports personal fees from Chiesi, Cipla, Hikma, Menarini, Mundipharma, Mylan, Novartis, Purina, Sanofi Aventis, Takeda, Teva, and Uriach, and other from KYomed INNOV. RB reports personal fees from AstraZeneca, Chiesi, Cipla, Sanofi and Teva, grants and personal fees from Boehringer Ingelheim, Novartis and Roche, and grants from GlaxoSmithKline, all outside the submitted work. VC reports personal fees from ALK, Allergopharma, Allergy Therapeutics, Diater, LETI, Thermo Fisher and Stallergenes. JCS reports other from Boehringer Ingelheim, GSK, personal fees, nonfinancial support and other from AstraZeneca, personal fees and other from Mundipharma. AC reports personal fees from Novartis, Regeneron, Thermo Fisher Scientific, Philips and Sanofi. ME reports personal fees from DBV Technologies and Mylan. JF reports being a partner in a company developing mobile technologies for monitoring airways diseases. EH reports personal fees from AstraZeneca, Novartis, GSK, Sanofi Genzyme, Teva, Circassia and Nestlè Purina. GI is consultant for Amicus Therapeutics and received a research grant from Amicus therapeutics. PK reports personal fees from Aflofarm, Fresenius, Lek‐AM, Novartis, Polpharma and Sandoz, grants from European Union, European Commission. LK reports personal fees from Allergopharma, HAL Allergie, ALK‐Abelló, LETI Pharma, Allergy Therapeutics, Stallergenes, Quintiles, AstraZeneca, GSK, ASIT biotech and Lofarma, and grants and personal fees from MEDA/Mylan and Sanofi. DLL reports personal fees from Armstrong, Astrazeneca, Boehringer Ingelheim, Chiesi, DBV Technologies, Grunenthal, GSK, MEDA, Menarini, MSD, Novartis, Pfizer, Novartis, Sanofi, Siegfried and UCB, grants from Sanofi, Astrazeneca, Novartis, UCB, GSK, TEVA, Boehringer Ingelheim and Chiesi. RL reports grants and personal fees from GSK, from AZ and Novartis and grants from Chiesi. Dr Loureiro reports personal fees from AstraZeneca, Novartis, GSK, Sanofi, TEVA and Menarini. JM reports personal fees and nonfinancial support from Novartis, Sanofi, AstraZeneca and Immunotek. MM reports grants and personal fees from Aralez, AstraZeneca, FAES, Genentech, Novartis, MSD, Roche, Sanofi, UCB and Uriach. JM reports personal fees from ALK‐Abelló, Sanofi Genzyme & Regeneron, Menarini Group, MSD, Mitsubishi‐Tanabe, Novartis, UCB Pharma, and GENENTECH—Roche, grants and personal fees from URIACH Group, MYLAN‐MEDA Pharma. AM reports personal fees from Aimmune, DVB, Nestlè Health Institute and Nestlè Purina. BN reports other from Co‐founded AsthmaTuner, eHealth system for asthma. YO reports personal fees from Kyowa Co., Ltd, Eizai Co., Ltd, Shionogi Co., Ltd., Torii Co., Ltd., GSK and MSD, grants and personal fees from Kyorin Co., Ltd., and Tiho Co., Ltd., grants from Yakuruto Co., Ltd., and Yamada Bee Farm. NP reports personal fees from Novartis, Nutricia, HAL, MENARINI/FAES FARMA, Sanofi, Mylan/Meda, BIOMAY, AstraZeneca, GSK, MSD, ASIT BIOTECH and Boehringer Ingelheim, and grants from Gerolymatos International SA and Capricare. JLP reports grants and personal fees from Air Liquide Foundation, Agiradom, AstraZeneca, Philips and ResMed, grants from Fisher and Paykel, Mutualia and Vitalaire, personal fees from Boehringer Ingelheim, Jazz pharmaceutical, Night Balance and Sefam. DP reports personal fees, nonfinancial support and other from Revenio, grants and personal fees from GlaxoSmithKline, personal fees from Merck and Sandoz, other from Boehringer Ingelheim, Novartis, MSD and Chiesi, nonfinancial support from Menarini, nonfinancial support from Pharmas, and personal fees and nonfinancial support from Salveo. DP reports personal fees from Amgen, Mundipharma, Novartis, Pfizer, Regeneron Pharmaceuticals, Cipla, GlaxoSmithKline, Kyorin and Thermo Fisher, grants and personal fees from AstraZeneca, Boehringer Ingelheim, Chiesi, Circassia and Mylan, grants from Respiratory Effectiveness Group, Sanofi Genzyme, Teva and Theravance, grants from UK National Health Service, nonfinancial support from Efficacy and Evaluation Mechanism Programme, Health Technology Assessment and stock/stock options from AKL Research and Development Ltd which produces phytopharmaceuticals, and owns 74% of the social enterprise Optimum Patient Care Ltd (Australia and UK) and 74% of Observational and Pragmatic Research Institute Pte Ltd (Singapore). FP has been scientific consultant, researcher and speaker supported by the following commercial companies: Menarini, Alk‐Abello, Almirall, Allergy Therapeutics, Anallergo, AstraZeneca, Boehringer Ingelheim, Chiesi Farmaceutici, GSK, Hal Allergy, Lab. Guidotti, Lofarma, Malesci, MSD, Mundipharma, Novartis, Roche, Sanofi, Stallergenes and Valea. Dr Sastre is consultant for Thermo Fisher, Hycor, Novartis, Sanofi, Leti, Mundipharma, ALK and GSK, paid conferences from Novartis, GSK, Circassia, Sanofi, LETI and FAES FARMA, and research grants from Thermo Fisher, Mundipharma, ALK, Sanofi. GS reports personal fees from ALK, Mylan and ALK and other from Rhinology & Laryngology Research Fund, BSACI and EAACI. MS reports fees from ASIT Biotech.sa, ALK and Allergopharma. AMTB reports grants and personal fees from Novartis, Sanofi, Mundipharma, GSK (GlaxoSmithKline) and Teva Pharma, personal fees from AstraZeneca, grants from Boehringer Ingelheim, outside the submitted work. IT reports personal fees from Honoraria for educational activities, speaking engagements, advisory boards from Boehringer Ingelheim, Astra Zeneca, GSK and Novartis and grants from GSK Hellas and Elpen. MW reports personal fees from ALK‐Abello, AstraZeneca, Bencard Allergie, HAL Allergy, Leti Pharma, Meda Pharma, Novartis, Sanofi Aventis, Stallergenes and Teva. SW reports personal fees and other from CSL Behring, Shire, AstraZeneca, Teva, Meda, Merck, GSK and Novartis, personal fees from Pediapharm, Aralez, Sanofi and Stallergenes. The other authors have no conflict of interest to declare.

Publisher Copyright:
© 2020 EAACI and John Wiley and Sons A/S. Published by John Wiley and Sons Ltd.

Keywords

  • ARIA
  • asthma
  • CARAT
  • digital transformation of health and care
  • MASK
  • rhinitis

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