Caregivers’ experiences of medication management advice for people living with dementia at discharge

Mouna J Sawan* (Corresponding Author), Yun-Hee Jeon, Christine Bond, Sarah N Hilmer, Timothy F Chen, Damian Wennekers, Danijela Gnjidic

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

13 Citations (Scopus)
3 Downloads (Pure)


Rationale, aims and objectives: Caregivers of people living with dementia play an essential role in managing medications across transitions of care. Adequate caregiver medication management guidance at hospital discharge is important to ensure optimal outcomes from medication use. This qualitative study explores the experiences and perspectives of caregivers about the medication management guidance provided at hospital discharge.

Methods: A qualitative approach using semi-structured, telephone interviews was conducted with caregivers of people with dementia across Australia. Purposive sampling was used to ensure maximum variation of diverse experiences and perspectives.

Results: Caregivers’ experiences of medication guidance for people with dementia at discharge were described in three themes including: a) inadequate information about medication management at discharge; b) limited caregiver engagement in medication management decisions;
Journal of Evaluation in Clinical Practice and c) difficulties ensuring medication supply post discharge. Most participants indicated they would like to be included in discussions at discharge. However, participation was influenced by caregivers being overwhelmed by discharge processes; proactively seeking information on medication-related harm; and belief in advocacy as part of their caregiver role. Caregivers reported they would like to receive a tailored medication list for people with dementia which included information on medications that may impact on the patient’s cognition, and for hospital staff to communicate with both the community pharmacist and primary care physician, to improve coordination post transition.

Discussion: In our study of caregivers of people with dementia, we identified key recommendations to facilitate regular participation of people living with dementia and their caregiver around medication guidance at discharge.
Original languageEnglish
Pages (from-to)1252-1261
Number of pages10
JournalJournal of Evaluation in Clinical Practice
Issue number6
Early online date15 Feb 2021
Publication statusPublished - Dec 2021

Bibliographical note

Acknowledgments: StepUp for Dementia Research, which is funded by the Australian Government Department of Health and implemented by a dedicated team at the University of Sydney. Journal of Evaluation in Clinical Practice
Funding : The project and DG was supported by the Australian National Health and Medical Research Council Dementia Leadership Fellowship.

Data Availability Statement

Data available in article supplementary material.


  • Transitions in care
  • hospital discharge
  • carers
  • caregiver education
  • decision making
  • transitions in care
  • decision-making


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