Foreword: A standard of care for Huntington’s disease: who, what and why

Sheila A Simpson, Daniela Rae

Research output: Contribution to journalEditorialpeer-review


Huntington’s disease (HD) is a relentlessly progressive and incurable neurodegenerative disease that affects men and women,usually presenting late in their 4th decade. Each offspring of an affected person has a 50% risk of inheriting this autosomal dominant disorder. It bears the name of George Huntington who described the disease in his talk, then paper, in 1872 [1] although others had written in earlier years about what is clearly the same disease [2].
Original languageEnglish
Pages (from-to)1-5
Number of pages5
JournalNeurodegenerative Disease Management
Issue number1
Early online date15 Feb 2012
Publication statusPublished - Feb 2012

Bibliographical note

The authors would like to acknowledge the contributing members of the European Huntington’s Disease Network (EHDN) Standards of Care Working Group, Gabriele Stautner for her work on the SoC Diagram and Patricia Finnemore whose significant contribution to the MCN paper on the EHDN website has helped in the production of this paper.

Financial & competing interests disclosure
The EHDN had no role in study design, data collection and
analysis, decision to publish, or preparation of the manuscript. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed. No writing assistance was utilized in the production of this manuscript.


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