Abstract
Due to the increasing social and economic costs of dementia, there are urgent calls to develop accessible and sustainable care for people with dementia and their caregivers. Multi-component non-pharmacological interventions (NPIs) appear effective in improving or maintaining daily functioning and well-being, but are typically labour-intensive for health care professionals, thus hindering access. The current study aimed to explore the feasibility and acceptability of a novel approach to widen access to NPI by involving caregivers to present part of the intervention and with staff from local support organizations instructed to train the caregivers. Trainers and caregivers were shown to comply with training instructions and the direct intervention costs were low. Feedback from trainers and caregivers was positive and well-being ratings from people with dementia and caregivers remained stable over time and caregivers' sense of competence improved. The findings suggest that involving caregivers and trained non-professionals to provide the intervention is feasible and acceptable and could be a cost-effective solution to improve access to care.
Original language | English |
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Pages (from-to) | 347-359 |
Number of pages | 13 |
Journal | Dementia: the international journal of social research and practice |
Volume | 18 |
Issue number | 1 |
Early online date | 6 Oct 2016 |
DOIs | |
Publication status | Published - 1 Jan 2019 |
Bibliographical note
AcknowledgementsWe thank staff and volunteers from Voluntary Service Aberdeen, Forget Me Not Club, NHS Grampian, Alzheimer’s Scotland, Quarrier’s Carer Support, and Aberdeenshire Council who participated as trainers, and Zahid Quayyum at the Health Economics Research Unit of the University of Aberdeen who contributed to the economic analysis.
Funding
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Aberdeenshire Change Fund (Study 1), NHS Grampian Carers Information Strategy and Alzheimer Scotland (Study 2).
Keywords
- dementia
- informal caregivers
- multi-component intervention
- costs
- improving access