People's Experience with Thyroid Disease: Survey Report

Relatively little evidence exists about the impact of thyroid dysfunctions on the
wellbeing and labour market outcomes of those affected. Previous work by the
authors highlighted how undiagnosed hypothyroidism can widen existing gender
disparities in the labour market. This survey of people with thyroid
disorders was carried out to collect information on patients’ experience from
the onset of symptoms to diagnosis/treatment and on the effects of
thyroid disease, before and after diagnosis/treatment, on their wellbeing
and labour market engagement.
• It takes on average 4.5 years for a thyroid condition to be diagnosed.
• Thyroid treatment does not appear to be always effective, with symptoms
persisting after the start of treatment and with some patients never feeling
the benefits of treatment.
• The diagnosis of hypothyroidism takes longer time and people with
hypothyroidism have lower levels of satisfaction with treatment.
• Thyroid disease has lasting adverse effects on people’s wellbeing and labour
market engagement, with only moderate improvements after the start
of treatment.
• Patients on average do not feel they are being heard by the medical profession
and do not feel involved or empowered during their medical journey.
• Dissatisfaction with involvement and empowerment is greater for patients
suffering from hypothyroidism.
• Patients feel more involved and empowered when diagnosis is made by
a female consultant.
• Results highlight importance of timely diagnosis and support for patients.