Shaping The Huntington’s Disease Journey: A Managed Care Pathway For Scotland

D. Rae, J. Eden, Z. Miedzybrodzka, Scottish Huntington's Assoc

Research output: Contribution to journalAbstractpeer-review


Across Europe management of long-term conditions and complex rare diseases has become a major focus of policy development. Such policies promote person–centred, co-ordinated multi-disciplinary care delivered through partnership working within managed care networks to ensure independent living and better quality of life. The Scottish Huntington’s Association has partnered with government agencies to develop a model care pathway for Huntington’s disease integrating health and social care services that has been successfully implemented across Scotland.
Original languageEnglish
Article numberL04
Pages (from-to)A84-A84
Number of pages1
JournalJournal of Neurology, Neurosurgery & Psychiatry
Issue numberSuppl 1
Publication statusPublished - Sept 2014
Event8th European-Huntington's-Disease-Network Plenary Meeting - Barcelona, Spain
Duration: 19 Sept 201421 Sept 2014


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