Abstract
Objective Family caregivers are regularly involved in cancer consultations and treatment decision-making (DM). Yet there is limited conceptual description of caregiver influence/involvement in DM. To address this, an empirically-grounded conceptual framework of triadic DM (TRIO Framework) and corresponding graphical aid (TRIO Triangle) were developed.
Methods Jabareen’s model for conceptual framework development informed multiple phases of development/validation, incorporation of empirical research and theory, and iterative revisions by an expert advisory group.
Results Findings coalesced into six empirically-grounded conceptual insights: i) Caregiver influence over a decision is variable amongst different groups; ii) Caregiver influence is variable within the one triad over time; iii) Caregivers are involved in various ways in the wider DM process; iv) DM is not only amongst three, but can occur among wider social networks; v) Many factors may affect the form and extent of caregiver involvement in DM; vi) Caregiver influence over, and involvement in, DM is linked to their everyday involvement in illness care/management.
Conclusion The TRIO Framework/Triangle may serve as a useful guide for future empirical, ethical and/or theoretical work. Practice Implications This Framework can deepen clinicians’s and researcher’s understanding of the diverse and varying scope of caregiver involvement and influence in DM.
Methods Jabareen’s model for conceptual framework development informed multiple phases of development/validation, incorporation of empirical research and theory, and iterative revisions by an expert advisory group.
Results Findings coalesced into six empirically-grounded conceptual insights: i) Caregiver influence over a decision is variable amongst different groups; ii) Caregiver influence is variable within the one triad over time; iii) Caregivers are involved in various ways in the wider DM process; iv) DM is not only amongst three, but can occur among wider social networks; v) Many factors may affect the form and extent of caregiver involvement in DM; vi) Caregiver influence over, and involvement in, DM is linked to their everyday involvement in illness care/management.
Conclusion The TRIO Framework/Triangle may serve as a useful guide for future empirical, ethical and/or theoretical work. Practice Implications This Framework can deepen clinicians’s and researcher’s understanding of the diverse and varying scope of caregiver involvement and influence in DM.
Original language | English |
---|---|
Pages (from-to) | 2035-2046 |
Number of pages | 12 |
Journal | Patient Education and Counseling |
Volume | 100 |
Issue number | 11 |
Early online date | 5 May 2017 |
DOIs | |
Publication status | Published - Nov 2017 |
Bibliographical note
This research was supported under Australian Research Council's Discovery Projects funding scheme (Project Number: DP140103838).Keywords
- family caregivers
- triadic
- medical decision-making
- conceptual framework