There is a consensus among practitioners that clinical practice guidelines (CPGs) improve care . Moreover, CPGs empower patients to make informed health care choices, influence health care policies, promote distributive justice, and advocate better delivery of services. However, it is currently unclear how key stakeholders (eg, patients, carers, charitable organisations, health care funders) can be active in the development and implementation of guidelines in a meaningful way alongside the traditional clinical and methodological membership. The hurdle of including key non-medical stakeholders is perceived as substantial despite patient-focused outcomes.
RHG acknowledges support from the Dutch Kidney Foundation, grant CP11.13 “KOUNCIL”, and EU FP7 programme No. 305608 “EURenOmics”. The sponsors played a role in manuscript preparation.
- clinical guideline development
- patient organisation
- renal cell carcinoma